DEBRA Ireland is a national Irish charity, established to provide support services to patients and families living with EB. It also drives research into treatments and cures for those living with the condition.
Established in 1988 by the patients and families of those living with EB, the charity’s focus has never changed since then and is reflected by the fact that patient family representatives continue to sit on its Board and their opinions inform decisions made both in terms of how funds are raised and spent.
DEBRA Ireland provides hope and support to those living with EB. There are currently 300 people living in Ireland living with the condition. DEBRA Ireland provides support not only to them but to their families who regularly act as carers.