Every year, around 500 to 600 babies are born with heart defects in Ireland. It’s an extremely worrying time for parents as they come to terms with their baby’s diagnosis and a treatment plan.
Heart Children Ireland (HCI) provides parents with support and expertise, supporting Irish families affected by congenital heart defects. The charity’s mission is to enable everyone affected by congenital heart defects to live their best possible lives — from newborns to adults.
The charity relies solely on the kind donations of individuals and businesses to fund life-saving equipment for hospitals. This equipment supports patients of all ages at Our Lady’s Children’s Hospital and the Adult Congenital Unit at the Mater Hospital.
How Heart Children Ireland Helps Those With Heart Defects Live A Fuller Life
Babies and Children
HCI organises events such as summer picnics and art therapy workshops for children to enjoy, giving families a chance to connect with others who understand their experience. At past Christmas parties, over 150 children have come together and connected as a community. HCI also provides psychology services to children, helping them understand and navigate their heart conditions.
Teens and Adults
Teens have a dedicated clinic room at the Mater Hospital thanks to the charity. It supports young people transferring from Our Lady’s Children’s Hospital into adult care. HCI also brings in guest speakers to educate teens and adults on diet, exercise, insurance and lifestyle issues, helping them lead fuller lives with heart defects. A full range of psychology services is available to members of all ages.
Families
From bereavement to understanding a diagnosis, or learning about financial supports, the charity offers a helping hand at every stage. Family members of a person with a heart defect can also access psychology support services.
Parenting courses are offered around Ireland to guide parents and guardians on how to talk to their child about their cardiac condition, and to help prepare children for how others might respond to their condition.
How You Can Help a Person With a Congenital Heart Defect
There are several ways to support people with heart defects and the work of HCI. The charity regularly runs step challenges and seasonal fundraising events, and welcomes donations at any time. You can also get involved by holding your own fundraiser for the charity, or by volunteering your time.
You can learn more about HCI and the incredible work that they do by visiting their website. You can also get in touch via email.
Frequently Asked Questions
What does Heart Children Ireland do?
Heart Children Ireland supports families affected by congenital heart defects, from newborns through to adults. It funds hospital equipment, runs support events, provides psychology services, and offers parenting courses to help families navigate a heart condition diagnosis.
Who can join Heart Children Ireland?
Any family in Ireland affected by a congenital heart defect can register with the charity for support, regardless of the age of the person diagnosed.
How can I support Heart Children Ireland?
You can donate directly through the charity’s website, take part in one of their fundraising challenges, organise your own fundraiser, or volunteer your time.
Does Heart Children Ireland only support children?
No. While much of its work centres on babies and children, the charity also supports teens and adults living with congenital heart defects, including a dedicated clinic space for young people transitioning to adult care.
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